Everything We've Written About hEDS
Our guides on hypermobile Ehlers-Danlos syndrome, from understanding your joints to moving through hard days without making things worse.
🆕 NEW IN OCTOBER 2026
🧬 Understanding hEDS
Hypermobile or hEDS? Where the Line Actually Is · start here
The Trifecta: Why hEDS, POTS and MCAS So Often Occur Together
The Medical Tests Behind a POTS, MCAS or hEDS Diagnosis 🩺 medically reviewed
🦴 Your joints, day to day
hEDS and Joint Protection: How to Move Through Hard Days Without Making Things Worse
Finding an hEDS-Literate Physical Therapist: What to Look For
🫀 The parts nobody warns you about
hEDS affects connective tissue, and connective tissue is everywhere, which is why so much of it has nothing to do with your joints.
hEDS and Your Skin: Bruising, Stretch and Slow-Healing Scars
hEDS and Your Teeth: Why Local Anesthetic Doesn't Always Work
Non-Restorative Sleep: Why Rest Doesn't Always Mean Recovery
💭 Life situations
Pregnant With POTS, hEDS or MCAS: What Changes, and Who to Loop In
Surgery and Anaesthesia With hEDS: Why Your Subtype Decides Most of It
Perimenopause and hEDS: Hormones, Joint Laxity and What to Track
University With a Chronic Illness: Accommodations and Evidence
📋 WHEN YOU WANT THE WHOLE RECORD
These guides explain what is happening. The Spoonie Planner is where you write it down: a one-page health snapshot you hand any new doctor, condition profiles, your medication and test record, appointment prep and emergency information. Ten printable sections, undated, so nothing expires.
$27 · Instant PDF · A4, prints on US Letter · One purchase, reprint forever
📋 A simple next step
Appointments are short, and hypermobility gets reduced to the joints. Our free hEDS Appointment Kit is three printable pages that stop that happening: the whole systemic picture on one sheet, a page for family history and what you could do as a child, and the three symptoms to raise first with what each one stops you doing.
💯 100% free · 📄 3 printable pages, A4 and US Letter · 🚫 No spam, unsubscribe in one click
🩺 Articles marked medically reviewed have been checked for medical accuracy by Disha Arora, MD (Pathology), MPH. How we research and review everything else is set out in our editorial policy.
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POTS Resources · MCAS Resources · Living With Chronic Illness · Free Printables