Pregnant With POTS, hEDS or MCAS: What Changes, and Who to Loop In
Considering pregnancy with POTS, hEDS or MCAS? Here's how each condition can shift during pregnancy, and which specialists to loop in early.
The SpoonieToolkitStudio Blog
Blog — Chronic Illness Tips for POTS, MCAS, hEDS & Dysautonomia
Post-Viral Dysautonomia: Why an Infection Can Trigger Lasting Symptoms
Still not right months after a viral illness? Post-viral dysautonomia is a real, documented pattern. What the research shows, and what to ask your doctor.
MCAS and Mold: The Trigger That's Easy to Miss for Months
Symptoms that flare at home but ease when you travel? Mold exposure is a commonly reported MCAS trigger, and it's easy to miss for months. What to know.
The Spoonie Planner Method: Why Symptom Tracking Fails (and How to Make It Stick)
Most symptom trackers get abandoned by week two. A spoonie planner method built for low energy — why tracking fails and how to make it actually stick.
Applying for Disability Benefits With a Chronic Illness: Where Do You Even Start?
Applying for disability benefits with POTS, MCAS or hEDS feels impossible to navigate alone. A practical starting-point guide to documentation and the process.
Chronic Illness and Anger: What to Do With the Rage No One Talks About
Furious at your body, your diagnosis, or a medical system that took years to believe you? Chronic illness anger is real, documented, and allowed to exist.
MCAS and Your Skin: Flushing, Hives and Dermatographia Explained
Unexplained flushing, hives, or skin that welts when you scratch it? MCAS skin symptoms are real and documented: what's happening and what tends to help.
Brain Fog at Work: Cognitive Pacing Strategies for the Job You Still Have to Do
Deadlines don't pause for a foggy brain. Cognitive pacing, why desk work makes it worse, and the workplace accommodations you can actually name and ask for.
The Home Flare Kit: Building a Rescue Station for Bad Days
A home flare kit means fewer decisions on the day you have least energy to make them. What to include, and where to keep it, for chronic illness flare days.
hEDS Triggers: What Actually Sets Off a Hypermobility Flare
hEDS flares rarely come from nowhere. Common triggers, the symptoms to watch for (joint pain, fatigue, brain fog) and what actually helps once one starts.
POTS and Caffeine: Should You Actually Quit It?
Guidance and patient experience genuinely diverge on caffeine and POTS. Why the advice conflicts, whether your subtype matters, and how to test it on yourself.
What to Do the Moment a Flare Starts: A Step-by-Step Protocol
A flare is starting, now what? A calm, step-by-step protocol for the first minutes of a chronic illness flare, built to think for you when you can't.